This is a book about monsters. Not the cute, laughably incompetent ones you see in animated movies, but the ones you meet in your own life: ugly thoughts, unexpected losses, inexcusable evils.At age twenty, Kate Wolfe-Jenson had already discovered her monster-mind. She was an expert at negative thinking and expecting disaster. Then she was diagnosed with Multiple Sclerosis. Together, the monsters whipped her into a wild dance, MS tapping out fear and sadness and her monster-mind twirling it into depression, rage and grief. It seemed like the monsters would win. A decade after being diagnosed, she discovered that what she knew about the creative process could help her deal with the frustrations of living with chronic illness (and life in general). Through that understanding, she entered into a dance with illness and healing, rather than running from them.Through memoir, essay and fanciful stories, this book explores the landscape of chronic illness, describes its contours and invites you onto the dance floor.
Praise from Readers
“amazing, a beautiful blending of honesty and creativity.” Rev. Bebe Baldwin
“It rang so true for me and my journey after the cancer diagnosis.” Pat Nyman
“only those with a chronic sickness… truly know what it feels like day in and day out. I just gave up because I could never find the words. Your way works. Ed Krawiecki 15-year MS veteran
When you are dealing with chronic illness, befriending your journey is like peeling an onion. You open the bulb and cry some while you peel and process a layer. You live a little while, discovering more, and then you process another layer and cry some more. In my...
Living with an illness, there may be times when the ice cracks and you fall through. Plans need to be released. What worked before no longer works. For a while, you may flounder. Be there, in the depths. Know that you will probably resurface. If you don’t, you get to...
As someone with significant disabilities, I worry that I am a burden on people around me. I tell myself monster-stories about how much better the lives of my loved ones would be if they didn’t have to sacrifice on my behalf. I imagine that such thoughts are noble,...
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